For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Previous Episode 1

Tomorrow I start the exercise protocol. I know that I will not experience improvement for the first month or so because I have been told as much.  That said I am willing to tough it through because I believe it will help.

The first time I had a bad episode of POTS I was around 22 years old (that was 25 yrs ago...gosh!).  The doctor didn't have the foggiest idea what was wrong with me.  I kept falling over, I was extremely tired, had chest pain and persistent "brain fog".  He gave me vitamin B12 shots weekly, arranged for a nurse's aid to come in and help out at my house and was very compassionate.  The days I spent bedridden I decided that I needed to keep my body strong.  As often as I could from my bed I would exercise: leg raises, sit ups, use my arms while lying down to lift weights.  I couldn't walk to the bathroom, I would crawl on my hands and knees, sometimes it would take me 10 minutes to get there but I would get there.

I also changed my diet from a typical North American one which included lots of carbs and animal fats to an organic one with lots of veggies and fewer carbs.  Since no-one knew what was wrong with me I thought perhaps I was being poisoned from pollution and food additives.  The doctor offered anti-depressants which I turned down flat.  I felt the last thing my body needed was some additional funky chemicals with uncertain side-effects.

After 18 months I was able to ride a bike but I was still symptomatic with a spike in symptoms coinciding with my monthly period.  I would ride my bike everywhere and then I joined the local gym and started working out.  My work outs got longer and more intense until I was exercising 5 or 6 days a week for 2 hrs.  I was sure buff!!!

Six years later my symptoms returned even though I was sill exercising.

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