For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Day 24

The Art of being a Wet Noodle
It is Day 24 of my experience with Dr. Levine's exercise protocol.  My orthostatic intolerance is better...walking around is easier but the FATIGUE!!  I have spent two days within pillow launching distance of the bed and I still feel tired. 

1.The exercises are getting easier.
2. My blood pressure and hr seem more stable.
3. Fatigue has increased.

Perhaps the fatigue is due to the mardigras party I went to on Tuesday night.  BUT I ONLY STAYED OUT UNTIL 10PM!!!


  1. Hi there! When I first started to excercise again I was just like you. I had the fatigue, but all of my other symptoms started to stabilize. I think it honestly took almost a year for me to not feel that fatigued. Hang in there!

  2. Hi Hilary - That is really good to hear. It's scary not knowing what to expect or what is "normal". When you did the program did you follow the exercise and salt intake exactly as prescribed?

  3. Hi Elisabeth,
    I actually was not a part of his program, Dr. Levine actually just diagnosed me back in 2006. I had already started to work out on my own before I saw him. I had always been a very active person and it killed me not to be able to do the things I once could do easily. By the time I had my appt with him he felt I could do it on my own since I had already progressed quite a bit from where I had started which was pretty much bedridden and house bound. Dr. Levine basically told me to increase my workouts to 45 mins 4-5 days a week and to keep my water intake to about 2-3 liters, salt about 2 grams per day. I add more salt and water when my bp is too low or if I have a day where my tachycardia is severe. My quick fix is a cup of chicken boullion for salt. A cup has almost a gram of salt!