For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Quote from Girl who finished Dr Levine's Program

Kayla attributes her complete recovery from POTS to Dr. Levine's Treatment Protocol! 
"I just completed a POTS study in Dallas , Texas . It is an exercise study in which they take you off all of your medications and put you on a specialized exercise regimen. It starts with all seated exercises like the cardio rowing machine, recumbent bike and swimming. It then moves you to the upright bike, elliptical, walking, and jogging. This is over a 3 month period.
4 months later, I do not have POTS. I knew this because I did not feel symptomatic but I now feel I can write about it because the tests confirmed what I had already known. I had a 2 hour standing test and a tilt test which all confirm this to be true."
Kayla from Stony Brook University


  1. hey!

    Im really enjoying your blog and your day by day run of what has been going on!

    Im considering doing the program myself but feel that my body is too weak and dysfunctional to handle it!

    If you dont mind can you tell me how much your life was impacted by POTS, are you able to work/eat/socialize etc?

    What kind of onset did you have? & what are your main symptoms? are they constant or fluctuating?

    Thanks so much!

    I wish you the best! Keep up the good work (and blog)!

  2. Hi Jordy
    Thanks for your comment! Good questions and I think they warrant a whole separate blog post. Here is a link to an earlier post which describes my first episode with POTS many, many years ago...

    As for your other questions, I will do my best to answer them in my next blog post ;-)
    Take care!

  3. Some people already exercise upright and still have pots.