For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Day 42

CRASH!  Today my bp is not stable at all.  In fact, I am having difficulty walking around.  When my blood pressure is unstable, if I have to walk then I hunch over like Quasimodo.  Not a pretty site and embarrassing to do if in public.

I am sure this setback is temporary and is caused by my womanly monthly cycle.  Grrrrrr!

Soldier On!


  1. I've just found your blog. I've been exercising with POTS for 5 years, with no guidance. I've always used a heart rate monitor, so I know when to slow down. But I still pass out frequently. And I still feel awful after I work out about 2/3 of the time. I'd be interested to know what the parameters are for your heart rate during exercise? What is your heart rate maximum during cardio? Thanks for your help.

    I really admire you for working so hard to get better. Best of luck to you!

  2. Hi Carolyn - checkout the Exercise page on the blog. There you will find a link to a heart rate zone calculator. For cardio - 60% max heart rate 3x on alternating days with strength training and then a 70% zone on 4th time. When Dr. Levine's study is published soon I expect there to be more exact advice as to the specific zone training. Important: The next day following a 70% zone session you should do a 40 minute cardio at <60%. Hope that helps for now!

  3. Thank you so much. That is very helpful. I went to the calculator. I only have one more question, and I don't want to bother you. Is your maximum heart rate calculated at Level 1, 2, 3, or 4 on the heart rate zone calculator? I didn't see that specified anywhere.

    I will definitely be following along to see when the study is published to learn more about the specific exercises that are recommended. Cardio with no standing sounds brilliant to me. I just haven't quite figured out how to do it yet.

  4. Hi Carolyn - Good questions! Level 1 is 50-60% of max HR, Level 2 is 60-70%, Level 3 is 70-80%. The explanations are written out below the chart in the heart rate calculator.

    ...don't forget to build your blood volume too through lotsa salt and water! :-) Good luck and pls let me know how you get along.