For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Information on POTS and OI for Physicians and Dentists

Before I write a post for this blog I normally look around the web for interesting posts, news articles or research papers that may be of interest.  Today I found a "Review of postural tachycardia syndrome" published by the European Society of Cardiology.  This eight-page document provides a general overview of POTS; with references to previous research and studies, sections on clinical features, diagnostic evaluation and treatments.

Accepted for publication in 2008, the review obviously does not contain the most recent research available but it does contain a fairly comprehensive list of some of the more significant papers on postural orthostatic tachycardia, vasovagal syncope, orthostatic intolerance and chronic fatigue syndrome.   It could be a helpful tool for those patients diagnosed with POTS or OI or for those who suspect they have POTS or OI and who need some backup information to give to their physicians.

The Review on POTS document can be found HERE

One particular citation to a paper by JM Stewart led me to this document offering advice to dentists treating patients with POTS or OI!  (I have had to ask my dentist not to use certain anesthetics containing epinephrine as they make my heart rate go so fast I think the organ will burst out my chest just like that scene from the movie Alien)  I will be giving the document to my dentist FOR SURE.

The only reference in the Review to exercise as a possible treatment for orthostatic intolerance associated with POTS is a citation of a 2005 study by Winker et al:
An exercise programme with regular aerobic exercise and lower limb resistance training may aid blood volume expansion and reverse deconditioning. In a randomized controlled trial, endurance exercise training (3 months jogging programme, increasing by 10 min duration each month, from 30 to 50 min, 3 times/week) improved symptoms of orthostatic intolerance in 31 POTS patients.
I believe Dr. Levine's research paper now accepted for publication by the American Journal of Cardiology will offer further evidence that specific exercises combined with blood volume expansion can be a successful treatment option for orthostatic intolerance.  WooHoo!!

2 comments:

  1. I hope he's right. I'm operating on a similar theory now. All the blood volume expansion medications in the world don't get blood up to the area I need it most (my brain!). I'm hoping with careful exercise however I can tighten up those vessels and improve my oxygen efficiency enough that at least some 02 makes it to my head. I can already move better, just can't think at all.

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  2. Hi Stacy: I know from my experience with the exercise regime that it is tough work!! That said I know I am making progress. I hope you find this site helpful. If you have any suggestions or comments on how it can be improved I would be happy to hear it!

    Soldier on!

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