For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Postural Orthostatic Tachycardia and Brain Fog

Brain Fog Not Just Another Blonde Moment

Brain Fog is one of the most wretched symptoms of POTS and OI. For those of you who have had the pleasure of "Brain Fog", let me try to tell you what it is like to live with:
  • When someone holds up their hand and asks "how many fingers?" you may not be able to give a correct answer
  • You forget how to read a watch
  • Directions to get somewhere are useless, just strap a GPS to your chest with turn by turn directions
  • Your family learns to leave sticky notes around the house for reminders- "don't forget your purse" on the front door for example
  • You forget your kids' names
  • You forget your name
  • You can't remember if you recently ate, slept, fed the dog, fed the kids
For patients with POTS and OI, brain fog may be caused by poor cranial blood flow or volume.  I think that is why since starting the Lotsa Salt Diet the symptoms of brain fog have improved for me. Also, I think the vitamin B2 has helped as well.

The T-Shirt on the right is actually available for sale here!  I love it as the phrase says it all!

3 comments:

  1. elisabeth, now that you are halfway through the program how long are you exercising and what exercises are you doing?
    To what extent has the exercise protocol helped? Like how much of you life have you regained?

    ReplyDelete
  2. Hi Amalee - I am exercising almost every day. I generally alternate between strength training and cardio. For cardio I do between 30-45 minutes at either 135bpm or 145bpm with 10 min warm up and cool down. (the program dictates what I do on which day)

    When I started I could barely get up the stairs. I would have to hold onto the banister with both hands and gradually work my way to the top. When I finished doing my cardio, walking was very difficult and I would fall over regularly. Brain fog was moderate to severe.

    Now I can do the cardio and walk tall afterwards. I don't get as much chest pain. My most annoying symptom is the fatigue, the FATIGUE!!! Sometimes I get so tired even breathing takes effort. Brain fog is better, blood pressure is more stable.

    My heart rate still is all over the place and I wake up a lot at night with my heart around 90-110bpm, feeling like I just ran a marathon. I am much more functional now than I was when I started. Absolutely no question about that!!! But it has been, and is, tough work.

    ReplyDelete
  3. Hi,

    I was recently diagnosed with POTS. I used to be very fit and healthy, and this is difficult getting used to. One of the most concerning issues is the brainfog. I used to be very quick witted. Now, sometimes I forget the simplest of things. Does the brainfog improve along with POTS treatment? Is there a regimen to address this besides Salt, diet, and rest?

    ReplyDelete