For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Sensitivity to drugs for people with Postural Orthostatic Tachycardia and Orthostatic Intolerance

Listening to Our Bodies
For those of you who have been following this blog you will probably already know that I have been experiencing the symptoms of POTS and OI for 20+ years.   When you have a chronic condition, over time you learn about what your body will and will not tolerate in terms of medication and in foods.  I don't know if my personal sensitivities have anything to do with  POTS and OI.  However, I suspect that they do.

Drugs and food I avoid, particularly when I am in an OI cycle:
  • cold & flu medicines
  • birth control pills
  • caffeine
  • diet pills (stoopid - I tried these once which was enough to know I couldn't take them)
  • codeine
  • ginseng
  • anesthetics
  • epinephrine
  • benzocaine - severe reaction
  • ampicillin - severe reaction
Generally, I just avoid drugs and look for alternatives.  

In doing research on OI and POTS I have found that there are a number of different flavors of the conditions such as low flow POTS, normal flow POTS, beta-receptor supersensitivity, alpha-receptor dysfunction etc.  It appears from the research studies that each "flavor" determines a patient's tolerance for certain drugs.
  1. Wouldn't it be nice if there were standard, doctor administered tests to determine which flavor of condition we had?
  2. Wouldn't it be nice if there was a patient handbook on what drugs to avoid and why?

1 comment:

  1. Hi, I just read this post and was wondering why you avoid birth control pills when you are in a POTS/OI cycle?

    ReplyDelete