For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Best Day EVER!!!!

I am in my last month of Dr. Levine's exercise protocol and I would like to make the announcement that today I have felt GREAT!!! Last week I was pretty tired and weak but today. W00t!

What a great day is like:

  • 5:30am woke-up and watched the weather channel on TV
  • 6am got kids up and made breakfast: omelettes with spinach and cheese, chopped up fruit 
  • 6:45 made lunches for school
  • 7:15 made tea (ginger and lemon)
  • 8am went for power walk (yes WALK!) on trails around our house through woods, up hills BPM >130
  • 9am finished walk
  • 9:20 rested 
  • 10am snack, took mini-chainsaw and pruned trees for winter damage etc
  • 12:30 picked pine cones out of golden retriever's fur
  • 1pm lunch
  • 2pm went back to pruning
  • 3:30pm snack, meeting at house
  • 5pm pick up kids 
  • 6om shower, snack
  • 7pm write on blog
  • Make dinner
Oh yeah baby!  This is how the other half lives... I totally forgot!!!


  1. that's great! is your fatigue getting better? can you go places wihtout a wheelchair?

  2. My fatigue is getting better and I haven't been in a wheelchair for a long while. Dr. Levine's program seems to be working! Thanks for asking Amalee :-)

  3. Still feeling well? Did you have visible blood pooling inyour limbs? Did you wear support stockings?

  4. Yes I still feel well or better most of the time (see my latest post). Yes I do get visible pooling in three forms 1) my ankles and feet swell or 2) they turn purple and swell 3) sometimes both my hands and feet swell and it happens out of the blue.

    My feet are also very painful to walk on after I get up in the morning.

    I was fitted for some special support tights but never bought them as they were REALLY ugly.