For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Happiness is not worrying about POTS & OI

Hi Folks
Yes, it has been quite some time since I last posted on this blog.  My apologies to those of you who thought I had some terrible relapse and so was incapable of writing.  I have, in fact, been feeling very well.  Since undertaking Dr. Levine's exercise protocol I have been gradually improving to the point where I feel (mostly) completely normal.  Since about 3 weeks ago I have been able to put in a full day's work.

So how have I been spending my time?  Primarily on a charity fundraiser to raise money for military wounded and their families. I am pleased that this black-tie event for 400 people and $200 a plate is now sold out.  Yay!

As Dinner Chair for the event I will have to say a few words of thanks to all of the people who have made the dinner a success.  I only hope that the adrenalin rush of speaking in front of such a crowd does not cause me to faint.  ...it has been known to happen.  I don't do adrenaline very well which I am sure other persons suffering from POTS can relate to.

I do intend to continue my writing on this blog and I thank you for reading...I hope you find it useful, amusing, annoying or at least something.  Stay tuned for more Yellow Wiggle adventures as I WILL follow up on Greg's offer to be interviewed!

3 comments:

  1. Yay!!!! I am so happy you updated and even more so that you have been doing well. I have Dr. Levine's protocol in hand at the moment and was on the fence as to whether I wanted to take on such an endeavor without really knowing if anyone has done well long term. You gave me some hope and motivation this morning!!
    I already feel better just upping the salt. Have been walking around my house this morning with heartrates in the low 80's. woo hoo! What are your walking hr now? Do you still qualify as having POTS? Not that it matters as long as you have most of your life back! Are you still having to salt load as much?
    Sorry for all the questions...I just really want to get well!!!
    Ashley

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  2. Excellent! Can you do a post comparing your limitations and normal day routine, like things you could and couldn't do with before the program and after the program . Does that make sense? Bit brain foggy. Can't wait for the wiggles interveiw!

    Cassie

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  3. How do you obtain the exercise protocol? Does anyone have it? If so can you please email me at u_just_hit_the_jackpot@yahoo.com. I was just diagnosed yesterday! :(

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