For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

POTS Recovery given "Sugardoll Blogger Award"

I would like to thank the academy, I mean, the Fabulous Sugar Doll Blogger Lauren, from the bottom of my heart for this award. I would like to thank Jenny and Michael and Scott. And Rusty Hoe for your inspiration and I would also like to thank the talented people at Google for making my Blog possible. (sniff)

I wouldn't be blogging, let alone accepting this award, if it wasn't for two women; my mother, without her incredible job of listening to my complaints and my sister and her reminders to get real.(sob, more tears)

...and of course I must thank my golden retriever "Jack" whose humor, wit and slobbery kisses I just couldn't live without. Thank you (leaving stage)Thank you everybody!

OK in accepting this award I also agree to list 10 things about me:

  1. I had a secret crush on William Shatner when I was 12
  2. I dislike smoked oysters BIGTIME!
  3. My shoe size is 38 (7 1/2 cdn)
  4. I put highlights in my hair
  5. I get parking tickets more frequently than the average adult
  6. I always wanted to be an artist that composes and performs yoga mood music
  7. I once purchased a CD called "Greatest Hits of the 70s" from an infomercial ad at 4am
  8. I love sherbet fountains
  9. My motorcycle is a bright red Harley Davidson Deuce
  10. I find ant hills fascinating

Green Bay Student Megan Hermann overcomes Postural Orthostatic Tachycardia

Megan Hermann pushes through obstacles
Health problems spur Southwest senior to become a doctor

By Kelly McBride for the
For many high school students, getting out of bed in the morning is a chore. For Megan Hermann, it was nearly impossible.

Plagued by a mysterious condition, the Green Bay Southwest High School student suffered blackouts, severe vertigo and excruciating pain. Doctors finally diagnosed a rare disorder and gave Megan the tools to help manage her condition.

Fast-forward two years, and the 17-year-old continues to thrive. She still suffers bouts of illness related to her disorder — Postural Orthostatic Tachycardia Syndrome — but fighting it has only strengthened her resolve to help others in pain.
Megan wants to be a doctor — or, as she puts it, "I refuse to not be a doctor." Those who know her say her intelligence and drive will get here there, no matter what the obstacle.

Megan is one of 10 area students to be named to the 2010 Green Bay Press-Gazette Academic Team. These elite students are being recognized for their academic, extracurricular and community involvement throughout high school, and their potential to succeed beyond.

Exercise and Postural Orthostatic Tachycardia: Awww, do we have to?

If you were to poll patients who have been diagnosed with POTS or OI, how many do you think would say they exercise on a regular basis?  How many would say they believe that exercise is important to their recovery?  I don't know the answer but I bet there are quite a few people out there who have not heard about or read the studies which document the improvements patients with POTS or OI can experience after embarking upon an exercise regime.

Here are, for your edification and reading pleasure, some of the reports I have found on supporting the fact that exercise training is significant to the treatment and improvement of symptoms in POTS and OI:
If you have found any other studies or papers on this topic please let me know.  And I hope that if you are a sedentary person with orthostatic intolerance or postural orthostatic tachycardia syndrome you will read this material and judge for yourself whether getting up and exercising is worth the effort.   

Iodine and POTS...Whaaaaat?

In this blog I have talked quite a bit about my belief that proper nutrition is important to recovery from Postural Orthostatic Intolerance and Orthostatic Intolerance.  An additional factor that you may want to consider from a nutritional point of view is hypothyroidism; a condition where your thyroid gland is underactive.  

If you have been diagnosed with POTS or OI your doctor probably already checked you for thyroid function.  What the doctor and the tests may not have picked up is a mildly underactive thyroid which can be caused by inadequate iodine in your diet.  Iodine is required by the body for the synthesis of thyroid hormones.

Estimates from the World Health Organization suggest that 16% of people in the USA have <50 Median urine iodine, mcg/L which is considered a "moderate" iodine deficiency.

What are the symptoms of mild hypothyroidism? They include fatigue, weakness, memory loss, irritability, weight gain, dry skin, brittle hair and nails. cold intolerance, muscle aches.  Sound familiar?

I am not suggesting anyone with POTS or OI run out and buy iodine supplements but I do believe that ensuring that there is sufficient iodine in the diet is prudent.  According to the Food and Nutrition Board, the recommended daily intake of iodine for an adult older than 19 yrs is 150 mcg.

The following chart on iodine content in foods is from the Australian Government:

And important to note; low selenium may interfere with iodine and other trace minerals and low chromium levels may also affect the metabolism.