For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

More on Exercise and POTS

I thought I would write a post about exercise and POTS.  I was very incapacitated with POTS and OI until I started an exercise protocol developed by Dr. Levine and his team in Texas (see this blog for further details and contact info).  Two months after starting the protocol I was more functional; able to walk around unaided, could perform exercises without the post-exercise crushing fatigue.  After four months I was 80% better.

I am much better now but I can suffer setbacks if I am not careful about maintaining sufficient fluid intake, managing my diet, exercise and getting enough rest.  My migraines return if I stop taking my daily riboflavin.


Not just any exercise routine will do.  The protocol prescribes recumbent exercises performed while keeping your heart rate within specific ranges for specific periods of time.  If you have tried an exercise regime without success in the past and it made you feel worse DO NOT FEEL DISCOURAGED.  To train your body back to a more functional state does require adherence to Dr. Levine's principles as described in the protocol.

For those of you who want to get more information on Dr. Levine's exercise protocol I encourage you to:
  • get in touch with Dr. Levine's team
  • research Dr. Levine and his previous publications
  • read this blog (not just the last couple of posts) including the pages on Lotsa Salt and Exercise!
Best of luck and please remember...it CAN get better...a lot better :-)