For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

Orthostatic Intolerance and Chronic Fatigue Syndrome (CFS)

Anyone newly diagnosed with POTS, OI or CFS is totally entitled to feel confused about the causes and interconnection between the three conditions.


In fact, there are enumerable hypoptheses on what causes what. One interesting study is entitled "The Importance of Orthostatic Intolerance in the Chronic Fatigue Syndrome" which appeared in the American Journal of the Medical Sciences by Schondorf and Freeman.  (Dr. Schondorf MD is a totally cool autonomic specialist working out of Montreal)

Since Dr. Levine's protocol is, so far, the only treatment that offers such dramatic improvement to POTS and OI patients wouldn't it be great to look at whether the same results are achieved with people who have POTS and Chronic Fatigue Syndrome? Or how about investigating the results in people who have OI and Chronic Fatigue?

Perhaps YOU have been diagnosed with POTS and/or OI and CFS. Would you be willing to try the protocol?  Hmmmm....

2 comments:

  1. I have CFS with POTS/OI as my major symptom. Plus pretty much everything else possible under the sun. But the POTS is whats making me the sickest. It'd be nice to find a Dr who knew what they were doing in regards to CFS with POTS.

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  2. I also have ME/CFS, and fibromyalgia, and I believe that POTS/OI is my major symptom. In fact, it was my first symptom, and I believe that had I been able to get a diagnosis, it would not have progressed to ME/CFS. I was told repeatedly that my symptoms were caused by depression/anxiety, although when on those meds, I still felt exhausted and dizzy, had pain, etc.....

    I do find that when I'm able to exercise, that I feel better. However, it is curious that some days I can do more than others. I have injured myself or found myself much more exhausted and in more pain for days after extending my home yoga practice by only 10 minutes, for instance... I would like to understand better what is going on with my body.

    BTW, I was pretty healthy before this all started. I am an ex-dancer, have 2 yoga certifications, ran, swam, walked everywhere, went to the gym, etc....

    I believe that Dr. Nancy Klimas also has developped an exercise protocol for people with CFS..... she has just moved to another location in southern Florida. I would imagine that she is aware of Dr. Levine's protocol...

    I'd love to try either one. I believe the use of a heartrate monitor is part of Dr. Klimas' approach also.

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