For people suffering from Orthostatic Intolerance, Postural Orthostatic Tachycardia, Mast Cell Activtation or EDS. Follow me as I document my struggle towards better health.

POTS, EDS and Mast Cell Activation...

Postural Orthostatic Tachycardia, Ehlers Danlos Syndrome and Mast Cell Activation is the triumvirate of conditions guaranteed to confound 99% of family physicians.   If you have been diagnosed with POTS you may also experience some the following bonus symptoms not directly associated with POTS:

MCA
  • flushing
  • food allergies or intolerances
  • sensitivities to fragrance, chemicals, medications
  • rashes, eczema
  • asthma
  • swelling of eyelids, lips, face
  • IBS
  • anaphylaxis
EDS
  • double joints
  • joint dislocations
  • bone pain
  • bruises
  • translucent skin 
Many people who have been diagnosed with one condition actually go on to collect further diagnoses.  The researchers at Vanderbilt have studied this association and have released some of their findings in this document: Hyperadrenergetic POTS in MCAD


It's important to know that there can be co-occurring conditions to POTS because lifestyle changes and certain medications can help relieve some of the symptoms.  In my case when I started experiencing sudden drops in blood pressure while exercising on the rowing machine I was able to resume my exercises after changing my diet and taking H1/H2 antagonists, mast cell stabilizers.

It appears there can be many flavours of POTS as well as variations in how mast cell activation and EDS manifest themselves.  Don't give up in the struggle to feel better.  Keep hunting for solutions.  I guarantee it is worth the time to find them.

3 comments:

  1. Hi!

    What heart rate monitor do you recommend? Also, did you do the protocol with Dr. Levine or with your own cardiologist?

    Thanks.

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